Celine Dion, celebrated for her powerful vocals and emotive performances, made a rare appearance on Monday night, June 17, 2024 for the premiere of her documentary, “I Am: Celine Dion,” at Lincoln Center in New York City. This occasion was particularly poignant as Dion has mostly stayed out of the public eye since disclosing her stiff person syndrome (SPS) diagnosis in 2021.
Expressing deep gratitude, Dion tearfully addressed the audience after a prolonged standing ovation, saying, “This is the largest audience I’ve seen in several years,” Dion remarked.
Stiff person syndrome is an exceptionally rare neurological disorder that causes intense muscle spasms and rigidity, impacting approximately one in a million individuals. Dion’s diagnosis necessitated the cancellation of her Las Vegas residency and world tour.
During her ten-minute speech at Alice Tully Hall, Dion acknowledged her neurologist, Dr. Amanda Piquet, who was present. Dion shared, “Through her efforts to manage and treat my condition, Dr. Piquet has turned my fear into hope.”
In a significant and heartfelt gesture, Dion announced the establishment of the Celine Dion Foundation Endowed Chair in Autoimmune Neurology at the University of Colorado, to support Dr. Piquet’s research into SPS and other rare neurological autoimmune disorders. “I want to aid others facing similar challenges and contribute to developing better treatments and, hopefully, a cure,” Dion stated.
The documentary “I Am: Celine Dion,” directed by Irene Taylor, provides an intimate look at Dion’s battle with SPS and her determination to return to the stage. The film, which premieres on Prime Video on June 25, depicts Dion’s health struggles and her efforts to rediscover her voice. It includes both new and archival footage showing the singer’s daily life and ongoing fight against the disease.
Throughout the evening, Dion repeatedly expressed deep appreciation for her fans, family, and medical team. Feeling emotional, she said, “I am so fortunate to have my fans in my life. Thank you.” Her oldest son, Rene-Charles Angelil, brought tissues to the stage, adding a heartfelt touch for the audience.
“This is my love letter to all of you. I hope to see you again very soon,” Dion concluded.
Despite her health challenges, she remains optimistic and dedicated to her career and supporters. Dion’s story embodies courage and determination, and her new documentary seeks to inspire others facing similar struggles.